Date: Tuesday, September 10, 2024
Time: 12-1:30 pm EST
Format: Livestream Only
Description:
This training focuses on the unique experiences across the lifespan of siblings of people with intellectual/developmental disabilities (I/DD). There are millions of people with I/DD in the United States, and most of them have siblings. Siblings are generally the longest-enduring familial relationship that any person has, and siblings often take on integral care-partnering roles as their parents age. Siblings can offer particular strengths and opportunities when taking on care partnerships with their loved ones with I/DD, but they are often underprepared and under-supported when they do. The trainer will share lived experience as well as utilize case studies and research in order to discuss lifespan needs of siblings and demonstrate the value of addressing them both in terms of individual and family outcomes.
Trainer: Eileen Slade, LCSW, is the assistant director of NC START Central, where she engages in systemic crisis prevention and intervention work for children and adults with I/DD. She received her MSW from UNC Chapel Hill in 2013 and has been doing various kinds of social work in the I/DD field since. She is a sibling of a person with I/DD, which informs her passion for developing inclusive, accessible, and neurodiversity-affirming social environments.
Learning Objectives:
By end of the program, participants will be able to
1. Outline the developmental needs of siblings of people with intellectual/developmental (I/DD) disabilities across the lifespan.
2. Highlight at least 2 unique strengths and needs of siblings of people with I/DD.
3. Explain the purpose and value of supporting siblings in terms of individual and family outcomes.
References:
- The Arc, 2017. Family & Individual Needs for Disability Supports (FINDS) Community Report. https://www.thearc.org/wp-content/uploads/forchapters/FINDS_report-2017-FINAL-VERSION.pdf
- Burke, Meghan & Chung eun Lee, 2020. Siblings of People with I/DD: A Look Across the Lifespan https://publications.ici.umn.edu/impact/32-2/siblings-of-people-with-idd
- Lee, C. e., Burke, M. M., Arnold, C. K., & Owen, A. (2020). Compound sibling caregivers of individuals with intellectual and developmental disabilities. Journal of Applied Research in Intellectual Disabilities, 33(5), 1069-1079. https://doi.org/10.1111/jar.1272
- Múries-Cantán, O., Schippers, A., Giné, C., & Blom-Yoo, H. (2023). Siblings of people with intellectual and developmental disabilities: A systematic review on their quality of life perceptions in the context of a family. International Journal of Developmental Disabilities, 1-14. https://doi.org/10.1080/20473869.2022.2036919
- Kramer, J. (2020). Teens who have siblings with I/DD: Six things parents should know, an Impact Feature Issue on Siblings of People with Intellectual, Developmental, and Other Disabilities. https://publications.ici.umn.edu/impact/32-2/teens-who-have-siblings-with-idd
- Meyer, Don, & Holl, Emily, 2020. Young siblings of individuals with I/DD: Common Experiences.https://publications.ici.umn.edu/impact/32-2/young-siblings-of-individuals-with-idd
- Sanderson, K. A., Burke, M. M., & Hodapp, R. M. (2024). Understanding natural supports in diverse adults with intellectual and developmental disabilities across life domains. American Journal on Intellectual and Developmental Disabilities, 129(4), 247-262. https://doi.org/10.1352/1944-7558-129.4.247
- Tekwani, Shruti, 2020. Navigating grief and loss: A guide for siblings of people with I/DD. https://siblingleadership.org/2020/07/03/navigating-grief-and-loss-a-guide-for-siblings-of-people-with-idd/
- Zucker A, Chang Y, Maharaj R, et al. (2022). Quality of the sibling relationship when one sibling has autism spectrum disorder: A randomized controlled trial of a sibling support group. Autism: The international journal of research and practice, 26:1137-1152.
UNC SCHOOL OF SOCIAL WORK – Focus on Family Series