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Introduction to the NC Family Navigation Guide: A new online resource to support your work with families w/ Elizabeth Crais, PhD, and Rebecca Pretzel, PhD
Date: Tuesday, September 13, 2022
Time: 12-1:30 pm ET
Format: Livestream
CE: 1 CE, read for more information on CEs
Fee:
$25, read for more information on fees and scholarships

Individuals with IDD/Special Needs, Self-Advocates, and their families can attend Focus on Family and Disability Seminars for FREE.

Description: This hands-on, interactive presentation will provide a brief overview of families’ perspectives of current navigation services in NC and previous research and work in this area. Participants will learn about a new online resource, the NC Family Navigation Guide, that was developed in collaboration with a statewide interagency committee of professionals and families. Presenters will walk through the online Guide and use case studies to illustrate its use with families.¬†Participants will have the opportunity to practice using this resource.

Learning objectives: By end of the workshop, participants will be able to

  1. Describe the NCNC Family Navigation Guide.
  2. Discuss how they would use the Guide for family navigation services in North Carolina.

Headshot of Rebecca PretzelTrainers: Rebecca Pretzel, Ph.D. is the Associate Director and a psychologist at the Carolina Institute for Developmental Disabilities (CIDD) at UNC-CH with an appointment at the Professor level in the UNC Department of Psychiatry. At the CIDD, she serves as Director of the NC-LEND Program, the UCEDD Associate Director, and the Director of Clinical Services. Becky has many years of experience in assessment and treatment planning for children with or at risk for developmental disabilities and their families. Particular areas of expertise and interest include the assessment of children who have low incidence or multiple and complex developmental disabilities including autism spectrum disorders, visual impairment, rare genetic and metabolic disorders, and behavioral disorders.  Becky provides direct training and supervision to psychology/interdisciplinary graduate students and maintains a limited clinical practice at the CIDD. She is/has been a Principal Investigator for multiple federal and state grants including two HRSA-funded ASD State Implementation grants, three AMCHP state system grants, and the statewide quality improvement project (National Core Indicators) for the Division of MH/DD/SAS. Becky also serves as a CDC Act Early Ambassador for the Learn the Signs. Act Early. program and offers training and resource support related to developmental monitoring, screening and early identification to physicians, healthcare, early care and education professionals and families.

Headshot of Elizabeth CraisElizabeth Crais, Ph.D. is a Professor at the University of North Carolina-Chapel Hill. Her research includes identification and intervention of young children with ASD. She has had multiple ASD-focused research grants, and with colleagues has developed ASD screening tools, and both home-based parent-mediated and preschool-based interventions for children with ASD. In addition, her work has included examining family perspectives about the services they receive for their child with a disability, particularly family navigation. She has strong collaborations with interdisciplinary faculty and professionals at the Carolina Institute for Developmental Disabilities, Frank Porter Graham Child Development Institute, UNC Pediatrics, UNC Social Work Program, School of Education, and Autism Society of North Carolina.

References:

  • Beeuwkes Buntin, M., Burke, M. F., Hoaglin, M. C., & Blumenthal, D. (2011). The Benefits Of Health Information Technology: A Review Of The Recent Literature Shows Predominantly Positive Results. Health Affairs, 30(3), 464-471. https://doi-org.libproxy.lib.unc.edu/10.1377/hlthaff.2011.0178
  • Haque, Saira, PhD., M.H.S.A., Ebron, S., M.S.P.H., Bailey, B., & Blumenfeld, Barry, M.D., M.S. (2019). Use of Health Information Technology among Patient Navigators in Community Health Interventions. Perspectives in Health Information Management, 1-12. http://libproxy.lib.unc.edu/login?url=https://www.proquest.com/scholarly-journals/use-health-information-technology-among-patient/docview/2212659237/se-2
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